Assessment of Health-Related Quality of Life of Epileptic Patients within the Indian Population at a Tertiary Care Teaching Hospital
DOI:
https://doi.org/10.37285/ijpsn.2024.17.3.4Abstract
Background: Epilepsy is one of the most limiting chronic disorders. There is a notable social stigma attached to epilepsy and is often associated with a decline in the overall quality of life of affected patients. It is crucial to identify and manage factors that affect the health-related quality of life of an epileptic patient and plan therapy to improve the same.
Aim: The study aimed to evaluate the health-related quality of life in individuals with epilepsy and examine the various factors influencing the same.
Materials and Methods: A prospective cross-sectional study was conducted in the general medicine wards of a tertiary care teaching hospital for six months. A total of 111 epileptic inpatients of both genders, above 18 years of age were included in the study. SF-36 questionnaire was used to assess the quality of life of the patients.
Results: The study found that multiple detrimental factors affect the quality of life of epileptic patients such as age, gender, marital and employment status, presence of comorbidities, seizure frequency, alcohol intake and duration of alcohol intake.
Conclusion: Management of epilepsy concerning these key factors is just as essential as lowering the stigma surrounding the disease in India.
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Keywords:
Epilepsy, India, Indian Population, Health-Related Quality of Life, Seizures, SF-36, Quality of LifePublished
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References
Vaurio L, Karantzoulis S, Barr WB. The impact of epilepsy on quality of life. Changes in the Brain: Impact on Daily Life. 2016 Jan 1;167–87.
Gambhir SK, Kumar V, Singhi PD, Goel RC. Public awareness, understanding & attitudes toward epilepsy. Indian J Med Res. 1995 Jul;102:34–8.
Chung MY, Chang YC, Lai YH, Lai CW. Survey of public awareness, understanding, and attitudes toward epilepsy in Taiwan. Epilepsia. 1995 May;36(5):488–93.
De Boer HM. “Out of the Shadows”: A Global Campaign Against Epilepsy. Epilepsia. 2002;43(SUPPL.6):7–8.
Hays RD, Sherbourne CD, Mazel RM. The RAND 36-Item Health Survey 1.0. Health Econ. 1993;2(3):217–27.
European Declaration on Epilepsy October 25, 1998. Epilepsia. 2003 Sep 1;44(SUPPL. 6):2–3.
Piazzini A, Beghi E, Turner K, Ferraroni M, Aguglia U, Antonini L, et al. Health-related quality of life in epilepsy: findings obtained with a new Italian instrument. Epilepsy Behav. 2008;13(1):119–26.
Laccheo I, Ablah E, Heinrichs R, Sadler T, Baade L, Liow K. Assessment of quality of life among the elderly with epilepsy. Epilepsy Behav. 2008 Feb;12(2):257–61.
Edefonti V, Bravi F, Turner K, Beghi E, Canevini MP, Ferraroni M, et al. Health-related quality of life in adults with epilepsy: The effect of age, age at onset and duration of epilepsy in a multicentre Italian study. BMC Neurol. 2011 Mar 10;11(1):1–13.
Baker GA, Jacoby A, Buck D, Stalgis C, Monnet D. Quality of life of people with epilepsy: a European study. Epilepsia. 1997;38(3):353–62.
Lee SA, Kim SJ, Han NE, Lee SM, No YJ. Gender differences in factors associated with resilience for health-related quality of life in persons with epilepsy. Epilepsy Behav. 2021 Feb 1;115.
Kishk N, Mourad H, Ibrahim S, Shamloul R, Al-Azazi A, Shalaby N. Sex differences among epileptic patients: A comparison of epilepsy and its impacts on demographic features, clinical characteristics, and management patterns in a tertiary care hospital in egypt. Egyptian Journal of Neurology, Psychiatry and Neurosurgery. 2019 Jun 7;55(1):1–8.
Batzel LW, Dodrill CB. Neuropsychological and emotional correlates of marital status and ability to live independently in individuals with epilepsy. Epilepsia. 1984;25(5):594–598.
Agarwal P, Mehndiratta MM, Antony AR, Kumar N, Dwivedi RN, Sharma P, et al. Epilepsy in India: nuptiality behaviour and fertility. Seizure. 2006 Sep;15(6):409–415.
Guo W, Wu J, Wang W, Guan B, Snape D, Baker GA, et al. The stigma of people with epilepsy is demonstrated at the internalized, interpersonal and institutional levels in a specific sociocultural context: Findings from an ethnographic study in rural China. Epilepsy Behav. 2012 Oct 1;25(2):282–288.
Shetty PH, Naik RK, Saroja AO, Punith K. Quality of life in patients with epilepsy in India. J Neurosci Rural Pract. 2011 Jan;2(1):33–8.
Gu XM, Ding CY, Wang N, Xu CF, Chen ZJ, Wang Q, et al. Influence of Occupational Status on the Quality of Life of Chinese Adult Patients with Epilepsy. Chin Med J (Engl). 2016 Jun 6;129(11):1285.
Collings JA. Psychosocial well-being and epilepsy: an empirical study. Epilepsia. 1990;31(4):418–26.
Heaney DC, MacDonald BK, Everitt A, Stevenson S, Leonardi GS, Wilkinson P, et al. Socioeconomic variation in incidence of epilepsy: prospective community based study in south east England. BMJ. 2002 Nov 2;325(7371):1013–6.
Guekht AB, Mitrokhina T V., Lebedeva A V., Dzugaeva FK, Milchakova LE, Lokshina OB, et al. Factors influencing on quality of life in people with epilepsy. Seizure. 2007 Mar;16(2):128–33.
Keränen T, Riekkinen P. Severe epilepsy: Diagnostic and epidemiological aspects. Acta Neurol Scand. 1988;78:7–14.
Srinivas H, Shah U. Comorbidities of epilepsy. Neurol India. 2017 Mar 1;65(7):18.
Miller V, Palermo TM, Grewe SD. Quality of life in pediatric epilepsy: Demographic and disease-related predictors and comparison with healthy controls. Epilepsy and Behavior. 2003;4(1):36–42.
Herodes M, Õun A, Haldre S, Kaasik AE. Epilepsy in Estonia: a quality-of-life study. Epilepsia. 2001;42(8):1061–73.
Kassie AM, Abate BB, Kassaw MW, Getie A, Wondmieneh A, Tegegne KM, Ahmed M. Quality of life and its associated factors among epileptic patients attending public hospitals in North Wollo Zone, Northeast Ethiopia: A cross-sectional study. PLoS One. 2021 Feb 23;16(2):e0247336.
